Wait...I have five more minutes!
"Welcome to Amanda's five minutes. Thanks for spending this time with me as we go through a series of treatments and surgeries to kick the butt of Breast Cancer...why 5 minutes? I always need five more minutes to clarify a conversation, to make my point, to drive to an appointment, to grocery shop. I live in that 5 minutes close call on being almost too late but almost always on time! Now, every next five minutes is the survival of my life. This is about a transformation of priorities, a journey of God meeting me in the middle, laughing as I go, and learning how to relax and get well. I just got a knock at the door, guess what my response was...Five more minutes!"
Wednesday, November 14, 2012
CELEBRATE! ONE YEAR!
Does it seem like a year went by? Yes. Now that I am cancer free, I am excited to see what the next year has in store. This time of year will always be a marker and a reminder in my life. A reminder of how much I am loved by my family and friends and a marker of how to live out every moment God has given me in this life. Though, there is one thing that hasn't changed and won't change...I will always need 5 more minutes!!
I am so thankful for this season without treatments and without cancer. I am thankful for the Christmas season, the lights, the trees and trimmings, the music, the bustling, the kid's excitement, the planning, the meals, the quality time. I hope and pray that you and your family will enjoy it as much as I will, this year and every year.
I spent some time reading my blog from last year on these days, reflecting on those times beginning treatment, what I felt like, etc. I praise Jesus that it's done. There was nothing more than God's grace in those days. That I was playing with my son, not overly sick, blood levels stayed up...nothing but God's grace.
Monday, October 8, 2012
Race Day Anticipation!!
In the days prior to the Komen Race for the Cure in Lexington, preparations were being made! Lynn Imaging wrapped an entire delivery vehicle in pink graphics! Emails were coming in to me saying, "Someone has joined your team." In the hours prior, Barb was gathering hats and gloves that matched for the team since it was a cool and shady 48 degrees on the forecast! Julie was in the Halloween Dept buying out the pink and black leggings and getting home to paint her husband's nails pink. John and Ella were boarding an airplane to fly to Ky to be a part of the race and visit horse country. Jack laid out his pink underarmour with excitement because he knew we were celebrating pink and Mommy!
The clouds broke and it turned out to be a beautiful morning. I was 5 min late and ran into the survivor circle screaming "I'm here!" and ducked under the 0-5 year banner ready to be in the pic. Cinder and I walked the survivor walk together.
Amanda's Team gathered to the front and some walked and some ran. I ran the whole race in 36min. Everyone made it through!
It was so much fun and I am so appreciative of my family and friends who were there and those who donated to my team! :):)
Monday, September 17, 2012
2 "Excellent Points" or Lessons Learned
"...It was Tuesday morning, November 1, when I found out at 35 years old that I had breast cancer. Initial diagnosis showed that it was a 4cm mildly aggressive mass in my breast and that it would be considered advanced due to the size and that it was in my lymph nodes. I had avoided signs of my breast changing, not understanding that it could be something so serious. My breasts have always been dense and somewhat knotty, so my “lump” located in the middle of my breast, was hard for me to catch. This is not an excuse or ignorance; it is the reality of not getting properly timed exams, not understanding that breast cancer is sometimes more than just a lump, and that many times it involves changes in the breast- all that should be addressed immediately and routinely, regardless of how busy we are...."
"...Now that I am cancer free, the question that people ask me and that I ask myself now is “how has my perspective changed?” To sum it up, I have learned so much about the power of “choosing”. When I made the choice that I was not a victim and turned to the power of prayer, I got to choose a very spiritual, powerful and rewarding journey that would mark me in many ways, but where cancer never defined me. Each day, I believe we have a choice in how to live out that diagnosis or whatever the situation may be in our lives. I guess its true that I have a new normal, but I have also resumed a hectic schedule. The difference now is that I understand more about the magnitude of the journey in each day than the destination itself.
Saturday, September 8, 2012
Join me in a race on October 6, 2012!
Please help support me in this important project by becoming a member of my team!
Remember, one person can make a difference in the fight against breast cancer.
Click on my personal page below for more details! I look forward to seeing you on race day!
Thanks for all of your love and support
Amanda
To send a donation:
Make all checks payable to:
Susan G. Komen for the Cure Lexington Affiliate
1795 Alysheba Way
Suite 3104
Lexington, KY 40509
Friday, August 3, 2012
It's official
Never underestimate the power of our God. Nine months later, I have a great story to tell! It's not about me, the story is about the support, love and grace of God through my friends and family and prayer. You are a true gift to me. Happy tears! We did this. I feel like a poor leader with a great team! :) Love you. Amanda
Tuesday, July 31, 2012
What IS radiation really?
So, radiation involves, first, parking. then walking through the garden flowers that are about 3 feet tall on either side of the sidewalk and then opening the heavy handicap doors, barreling in and being greeted by a woman who calls me "Precious" and she lets the technicians know I have arrived. I go through the main waiting room into a door that leads to dressing rooms to change and another waiting area with a tv, for those of us in our gowns. I go in the dressing room and change and come out to sit with my gown on. Often, there is someone there to visit with. Through this process, I have met several people. We all discuss our cancer as if we are discussing what we had for dinner last night. We support each other. Butch likes to hug. :)
Because they are radiating under my arm and chest wall, my positioning is set just so with my left arm over my head on rests and my right arm to my side with my head turned. I get to face the computers so that I can see all of the calculations that apply to me. These calculations include exposure to the radiation, amount of electrons released, x y coordinates lined up that match the stickers on my body, table placement, and more that looks very complicated to understand. Everything has to be perfect. The technicians will ever so slightly adjust my body so that it lines up just perfect.
The country music is usually on in the background. The lights dim when they are setting me up for my treatment. It takes about 10 minutes total. There are 3 times that I am adjusted by the technicians and the radiation machine flies overhead to just the right spot each time. Each time, the technicians leave the room and I hear a buzz coming out of the machine. Each buzz approximately 20-30 seconds. I don’t feel anything at all. The machine doesn’t touch me. It simply sends out beams that radiate the skin. Now I am 30 treatments in and my skin is very red and peeling now. I am a little uncomfortable, my reach is limited, but overall I am doing well. I am working a lot and I don’t feel as tired as some people going through radiation. I could use a nap from time to time, but who here could not use a nap from time to time!? I am exhausted as I write this, but it is 11:22pm.
I am feeling much more normal. I still am wearing my hair even though I have a good helmet head of hair. I am losing a little weight. I need to get out and walk/run more. We are days out from sending our son to kindergarten and getting on a whole new schedule. So, here we go with another new normal! J
I pray for you all of the time and I appreciate your prayers for me- they have been working!! I am cancer free and can move forward when I get done here! I have truly felt the love you have poured out over me. Whether through a card, or through a prayer or a thought, I feel so loved!
I’ll keep posting here. I will have more updates as I will be starting Tamoxifen after radiation. We can welcome the hot flashes back, together! And that will be for 5 years, yes, 5 years- menopausal symptoms. I have got to work on my sense of humor! I could be likely to hurt somebody, especially slow drivers. HA! Pray for patience and lots of humor, again, who couldn’t use more of that in their life! J
Lots of love! Amanda
Monday, July 2, 2012
The Chair
At this moment, I am sitting in the spot where I felt the breast cancer myself for the first time and realized breast cancer could be a reality for me that was confirmed 24 hours later. This is my view. This was exactly 7 months ago to the day and time (Monday 11/01 2:15pm) that I sit here now (Monday 7/02 2:15pm). Wow. Thank you God for letting me sit in this chair many months later! This feels very significant to me right now. I'm just taking it in.
Tuesday, June 19, 2012
Champions
Friday, June 15, 2012
Update 6/15/12
I have been working a lot lately. Feel kind of back to how things were...always behind, always rushing. :) I need to work on this. I ate well for about a week. I was inspired and had the momentum to last me a few days. Will be getting back on that soon. Maybe have to do a formal WW meeting?
Love to you!
Amanda
Tuesday, June 5, 2012
Yeee Haw!
So it was a productive day! At the CT scan, they have you drink 2 big things of a milky substance and then they inject iodine based fluid into your veins. Tech says as she is injecting it, "it's going to feel warm, you will have metallic taste, and you will feel like you peed yourself.". Glad I didn't really pee on myself. She was right though, sure did feel like it. Haha!
I have appt with dermatologist today to see about these fingernails. They are coming off nailbed and I am concerned about bacteria. But they are atached enough that I cant rip them off, sorry of TMI. So maybe surgically remove them? I will find out!
My mtg w Radiation Oncologist is on Thursday. Will find out schedule for the summer.
I am dedicated to eating healthy and whole foods. Day 2. :). I read that fat makes estrogen which feeds my cancer. So, a REAL good reason to drop it like a hot potato!! :). Seriously!
Love to you!
Amanda
Tuesday, May 29, 2012
Time for a Cupcake!
12 of 12 D.O.N.E.!!!! :) Made cupcakes for nurses. They are very special and took good care of me during these last 18 treatments all together. Wow. I can't wait until the chemo washes out and I become YET another new person. Thanks for meeting me here during this. I will be starting radiation as this saga continues...so stay tuned for updates. What you can do for me? Go out and get the best cupcake you can find and enjoy it to the max!!!! Love and prayers, Amanda
Sunday, May 20, 2012
Siked! Tx 11 of 12
So some girlies and I were talkin'... October 6 is Susan G Komen race in Lexington, KY (www.komenlexington.org). You are invited to be a part of Team Amanda- we will get a more creative name to this, but we will have tshirts. :). And I want us to run at the front of the pack, consider this early notice. However, maybe you want to walk, maybe you just want to finish...this is great!- regardless, let's just do it! I'm siked the moment, so I feel like I could run a marathon tonight while I sleep. :). The point is, put it on your calendar. I will get an RSVP site going with information and so that you can get your tshirt if you want it.
Switching gears, last week I mentioned my momma and just little bit on just how much I love her and how she has been so good to me. I want to post here just how much I love my husband and how supportive he is in this journey. He has done so much around the house, with our son, and for me. He has been patient, loving, listening, spiritual, funny, sweet, gentle, optimistic, easy.
I love my family and my friends so much. I can't imagine this life without them (you) and without Jesus leading it. I knew this all before... now in this journey, I've really just gotten to put these relationships in overdrive and learn more about them, and just how important they really are. What a gift this journey really is. :). Wrapped in fuscia pink with a beautiful fluffy bow!!
Update on schedule--Tomorrow is treatment 11 of 12! Chemo final 12 of 12 is a week from Tuesday. I have a CT scan on June 4 that should confirm cancer clear. I meeting with Radiation Oncologist, Dr Marta Hayne on June 7 to layout radiation area. Hope to start Radiation on June 11 that will consist of 37 treatments at Central Baptist Hospital in Lexington that will be completed August 4 or so. Treaments will include park, walk in, 10 min appt, leave. Short appts and I anticipate little side affects- much easier than chemotherapy.
Tuesday, May 15, 2012
2 left! whooo hooooooooo
I am so excited to have 2 left. It is a bit overwhelming is so many ways. I had a normal, then I had a new normal. In 2 weeks, I will yet have another new normal as I step away from what I know life with chemotherapy into a new, new normal as I step into radiation the next week. It makes me a bit anxious, nervous, emotional. I am convinced that radiation will be easier treatments, so that isnt what really provokes the emotion. Its just may be that I am so stinking happy to be so almost done with this. It may be that I have had such rework done in my priorities, my perspective, my heart that I am just feeling vulnerable stepping into new terrritory and eventually much of where I left off.
These are the areas I pray for God to continue to work to show me the next that He has for me. He does not intend for me in a place saying "God if you just do this, then I will do this". God will always do His will for me regardless of my actions and my performance. I just need to listen to what He has in store and take each day to live in that truth. He has provided His ways of grace and peace through this journey. I have learned more about his unexplained peace and power during this journey. He has provided me strength beyound comprehension, peace beyond what I could have ever expected, support and angels beyond what I ever could have imagined. The funny thing is He was just as much there for me before cancer in these ways, and it was always a choice in what I wanted to believe what I could do on my own verses what He was wanting for me. The action of picking or choosing God over self has been the ultimate learning experience and the most rewarding.
Love, Amanda
Tx 9 of 12
The side affects from the switch seemed easier. Thursday was a good day, but Friday seemed to catch up with me. Managed through it. Travelled to see family and my niece graduate from college. Did well for the weekend and had a great visit.
Only 3 left!!! Thanks for stopping by and checking on me! Thank you for your love and outpouring of support!
There is a meeting coming up in June that I will be handing out awards. My theme is "Champions". I really feel like in this lifetime we are meant to be Champions for others and we recieve Champions in our lives who step up and go to bat for us through prayer, support, love, good thoughts, and just having a real sense of connection during a time like this especially. God places people on our heart in this way and I believe I have been placed on your heart as you are my Champion. Until now, I thought they were very few in a lifetime, but this is not the case. Champion could also mean angel.
Love, Amanda
Monday, April 30, 2012
Tx 8 of 12.
Treatment day is just more time consuming than anything. I am much more affected by treatment on Thursdays and Fridays. The fatigue is really profound. I slept from Thursday 8:30pm to Friday Noon, only to return to bed at 9:00 or so Friday night. There is still no rhythm to each week. I may sleep well or not. These 2-3 days days are especially very difficult days. The next 5 weeks could possibly the hardest as treatments compound. Nausea not the issue this round, but shear fatigue on these days is debilitating, no sugar coating it. I have some other side affects, such as a bloody nose most of the time (Sorry if TMI, its just the truth of it- bloody from dry) and my fingernails are strange making my fingertips very sore, amongst other things. Overall, its compounding but ONLY 5 more chemotherapy treatments. No problem!
Today was a really great day. I spent a lot of time at church with a great message, great people, and knowing that it doesn't matter what happens- good or bad, God has all that is in store for me now and later. It's such great news to have hope that is found in knowing Jesus. That my hope, my life isn't placed in material things, the daily grind, the next big sale, not even in the people I love, but in God.
I attend Quest Community Church in Lexington & Frankfort, KY. I love my Church. I love being part of the Church. I am thankful for those who went before me to saying yes to the risks with God, as Quest celebrates 13 years, this week. I am especially thankful for when they said yes to the sacrifice to opening doors in Frankfort, KY, 10 minutes from my home, just 3 1/2 years ago. I am thankful for the authenticity and an undying commitment to serving God, of the leaders at Quest. I am thankful the way they have loved me during this time.
God- thank you for all you have done, will continue to do and provide. Thank you for each person reading this. May you speak clearly to them. May they receive clarity and seek you in all that is entrusted to them. Thank you for all of the love and care where you have carefully placed each one of these people in my life (those I know and don't know) during this time with my cancer. Amen!
Lots of love, Amanda
Sunday, April 29, 2012
Tuesday, April 17, 2012
TX 6 done. 6 more to go!
Here is a great story. I met 3 sisters at treatment. One receiving chemo treatment for pancreatic cancer. One had breast cancer 5 years ago and doing well now. The other one loved my cake. I actually met them last Monday when I took in a cake platter for the nurses and ended up walking around the waiting room, serving everyone waiting. :) Many couldn't believe that I was a patient. Yesterday's story is so wonderful to me, because, my aunt went to the bathroom where the one sister, breast cancer survivor for 5 years, was teared up in the bathroom. She stops my aunt and says, "I have something for your daughter." She handed her a bracelet with "all you need is LOVE" enscribed on it. She wore this bracelet the last 5 years and asked my aunt to give it to ME. These days, I really don't tear up often about what I am going through, but in this case, it is very touching for me.
I am blessed to have the schedule that I have. I work for amazing people who pray for me and support me incredibly. I am so appreciative of the time I have to digest all that is going on, get through the process and focus on healing.
If you ask me how I am doing, I will tell you I am doing well. Friday was a hard day. I stopped in Kroger parking lot and didn't even get out of the car. Went home to sit on couch. On another note, on Sunday night, I took my steriod and cleaned furiously for an hour! I will also tell you that life is a box of chocolates, you never know which one you are going to get. I have experienced the several types of chocolates lately. I don't like them all, but it is my box. This is my life, it is my choice on how I choose to respond. I can pick distaste, distrust, disheartening, disinterest, distance. Or I can pick love, respect, redemption, trust, a soft heart, peace, deliverance. Today I choose the latter along with dark chocolate that has cancer fighting antioxidants. My next 5 years may bring life, but it doesn't mean that it will be an easy 5 years regardless. I am thankful for a God who can take those moments for me. It is my guess the sister feels the same way.
Thank you. Love you. Amanda
Tuesday, April 10, 2012
4/9/12 Follow Up Reports and Chemo
The report is that the surgeon says that all looks good. I have a sore muscle in my back for some reason but he says he isn't worried about it. I have to have mammogram in November (1 year follow up) since I still have the other side at this point until my next surgery in January possibly.
Oncologist is pleased with me. She says I look good and that I am doing well. Only 7 more treatments of chemotherapy!! :). There are some side effects I need to be careful of, but not huge deal.
Chemo went fine. I sat down around 2:30pm and was done at around 5:10pm. I slept so sound. I am starting to like these treatments! Best sleep in a while- even if it is just an hour. Haha!
I met a woman whose breast cancer returned in her lungs 6 years ago. She comes in every 3 weeks for a dose of chemo and goes on with her life. She looks great and says breast cancer was the best thing thats ever happened to her because it got her priorities straight.
Thank you for your care an concern for me! Your prayers are working!
Never underestimate the power of how God can work in your life. It's not my work, my performance, my cancer, my ups and downs that I rest in. It's God's strength through Jesus that I can rest and trust. It's through my experience, only in the recent few years, that I have learned this allowing me to lead a much richer and fuller life than I ever expected, even in these minutes.
"I know how to live on almost nothing or with everything. I have learned the secret of living in every situation, whether is is with a full stomach or empty, with plenty or little. For I can do everything through Christ, who gives me strength." Phillipians 4:12-13
Monday, April 9, 2012
Tx 5 of 12
I usually don't sleep much the night before chemo. I got about 4.5 hours of sleep, which is better than usual. My side effects seem to be minimal at this point. I am happy with the grace that has been given in this. Its one of those things that hit me over the last week or so. I have not had issues with weight loss, inability to eat, extreme lack of energy. This is truly grace over the last 5 months. It hit me that it could be so much worse. So, with this realization, now I am encouraged to do more from my old normal in my new normal.
Today is 2 month surgery follow up with surgeon, Dr. AJ from Central Baptist. I am also seeing Oncologist, Dr. Harper today. Her appts are every 2-3 weeks now, though I am going in for chemo every Monday now. I pray that these appoitments continue to bring the message of healing and progress. I have a couple of concerns with soreness and side effects that I will be discussing. Nothing major.
Thank you for checking in. Girls, go get your Annuals and your Mammograms! Boys, you pay attention too! My friend's father was diagnosed with breast cancer. Stay aware of your bodies, go to doctor to get your checks done! Men- don't not do this, especially with prostate, colon and all that you really need to have checked.
Here is my pic for the day.
Love you all!
Monday, March 26, 2012
Treatment 3 of 12
Hi! Here we are today at treatment 3 of 12 in Round 2. I included a pic of me so you can see how great I look ;). Haha! I took about 15 pics sitting here in parking lot before I decided to post this one. People who can see me are wondering about me. I just went in to do lab work and have an hour to kill before treatment. They do bloodwork to make sure counts are good before loading me up. My thoughts this morning were to walk during this time, or get a donut. Neither are appealing at the moment and Spaldings is closed. So I will use this time to pray, how about that conclusion?! :)
Father, I pray today for the nurses and doctors caring for their patients today. Give them wisdom and guidance. I pray for the families who are experiencing health issues- some that are under control and some that are not. I pray that you will provide your healing and comfort to these them. I pray you give them strength and security, the only kind that can come from you. I pray for my dear friends reading this, that each one knows how special he or she is to me- for those I know so well and those I do not. I pray that you lift them up today. I pray that their day is light and full of you. I pray against insecurity, doubt and fears. I pray that they see you in the middle of all they are experiencing and decisions they are making. I ask that you bless them with your favor and with your peace today. Let this prayer wash over them and give a new perspective on whatever it is they may face today. I love them in Jesus name. Thank you for each one you have put into my path. Thank you for sending your son just for us. In Jesus name I pray, Amen
Monday, March 19, 2012
TX 2 of 12, Round 2
Sleep with new round. Rare chemo photo. 3/12/2012 |
How do I feel, physically?
So, it turns out that this chemo is easier than Round 1, but not as easy as I thought it was going to be. What makes this one different and how do I really feel? The first one had nausea, lots anti nausea meds, white blood cell booster shot ($6k shot wow), fatigue, and we can revisit symptoms posted on January 10th to get the full scope...When I read back on those symptoms it made me laugh a little. Round 2 is actually much more similar that I even thought, actually. I will rank what is going on...
- Sleep is wacked. Example. Sleep at 3am, up at 7am, nap at 3pm, sleep at 2am, up at 6am, sleep at 8:30pm...
- Fatigue is ever present.
- Hot flashes. Have to rank high due to annoyance!
- My mouth and lining going down feels a like the top layers are just not there.
- Dizzy from time to time.
- Dull Muscle pain (like having restless legs from too much walking or something). I think this is the biggest culprit for keeping me awake, along with the chemo and steroids.
- Taking steroids with each tx in round 2. Pharmacist says, "Will make you hyper, irritable, hungry.” Well, girls and boys, we know that when we see it- don’t we! Thanks for letting me know in advance Doc! Exactly what went through my mind: “What do I do if I am already hyper, irritable and hungry. This can’t be good. Oh, crap.”
I will stop there. Overall, not bad, really. Just giving lots of details. Put it all together in a wig, with a prosthesis, smashbox eyebrows, lip color and flipflops-- its not that bad! Haha! Having hot flash now as I write, I get it, I really get the concept. Gees! Hot flash gone.
My Son Accepting Baldness…or not
Another random note, my son saw my bald head in the last 2 days or so, twice. After the 80 degree day on Sunday, I realized I cannot wear a wig everyday in the heat through July (when I think I will have a little hair start growing back). I wear it for the kids in our neighborhood for normalcy. However, this will need to change. So, I started to acclimate my son. He says, “You look like a different Mommy.” “You look weird.” “You look like a ghost.” These things do not hurt my feelings at all. I love when he expresses what he feels without holding back. He changed his opinion slightly tonight and did say “You look pretty but different.” I felt he should touch my head to help him understand and he did the soft spots. Still too much. I knew he would do fine with hats and my new hair, but knew the bald was a bit much for him. I am going to keep pushing it along carefully until he is used to it.
In Summary
How am I doing emotionally and spiritually? So very solid. I can say this without hesitation at this point. Sometimes I feel like crying out of the blue because it saddens me that anyone goes through this. There was a family crying while walking past me in waiting room. I am blessed to know that I may have longer than some to live, whether that is by 2 years or 50 years, we have yet to find that out. But, I am accepting those terms 100%. This helps me be solid. It helps me be better. It helps me draw my strength from God as He has promised the best for me. It binds that relationship and trust. It grounds me. This is the perspective that is different; this encompasses the journey.
I am thankful for you, my friends and family, and for your prayers and support. I just really love you. Thanks for checking in on me.
Sunday, March 11, 2012
Round 2- ding ding!!
I have learned lately just how important it is to be me and to be true to who we are. Accept things for what they are and not fear them. And to celebrate my birthday was amazing- 36 years old felt good!!
Thank you for your prayers and support. I am thinking that I will scoot back into some normalcy this round. Like the normalcy before treatment. I don't want to push it, but seems like it will be doable. Everything feels so different, but I will just see what will happen.
Love you! Amanda
Let's hear it for Round 2!! Well, Round 2 isn't exciting but the fact that Round 1 is over is great! This round should be a little easier. It's one type of medicine and a little easier on the senses, so to speak.
I ventured out this weekend to Florida. Yay! It was great. Great because it was Florida, because I was with my family and because it was my birthday on Saturday. Never have celebrated March 10 with my toes in the sand. Most I did was go out to eat! ;)
Sunday, February 26, 2012
Chemo Tx 6
Monday morning (2/27) at 9:15am is chemo treatment number 6! This is the final one of this round- being the Adriamyacin (red devil are what the nurses call it) and Cytoxen. :) My next treatment will be in a couple of weeks begin Round 2: Taxotere for 12 weeks, once per week. Hair loss and fatigue will continue, but sounds like it will be a bit easier than this first round, and maybe no nausea? :)
Thank you for your prayers, love and support! I am so thankful. I know its been a process. You have stuck by me with your support. Its easy to slack, but you haven't. Thank you.
Monday, February 20, 2012
With that said, I am experiencing hot flashes. I am assured it is not pre-menopausal. Though between those and the lack of right words or connected thoughts at times, it is as close as I am going to get hopefully for a while once this is done.
When I started this journey, I had a strong healthy body. So, I was able to take a chemo treatment here, a chemo treatment there and get back up and keep going. Now after 5 chemo treatments and sugery, my body is feeling these effects and is becoming exhausted. I don't have that energy reserve that I had a few months ago.
The deal is, I am fighting this and I am going to win. I found out last week that when I started this, I was probably late stage 3 and when they removed everything, it was staged at 2b. These final treatments including 7 weeks of radiation will take me into August and it is everything they can do to me to reduce my risk as much as possible for its return later. So bring it on!
Last night, I watched a show that Oprah did about Tony Robbins. He is a "life coach" and very good at what he does. He talked on stage for 11 hours about how to live to your best and then had them walk on fiery hot coals. Part of his intent is that you feel empowered about everything in your life because you can do anything if you can walk on fire. Cancer is probably like my fiery hot coals. I am feeling empowered in this experience. I don't think you need fire or cancer to be empowered in life. I am learning what makes great moments is with what you have right in front of you or inside of you. Sometimes pulling it out is like pulling a shiny new object out of murky waters depending on where life has taken you. Everyday we have a choice to be the person we want to be (assuming you want the best) or designed to be. In my relationship with Jesus, I have learned that the most. I have a choice to be in my agony and exhaustion, or to be on my feet ready to be the best I can be. My world is not just for me to be rid of cancer and go on; its for those around me to experience a freedom and peace that comes with knowing God and knowing that there is more inside of us. If we become satisfied with status quo, time will run out and then who will do it?
This became a personal journal session. But, I'll tell you, I have never been committed to journaling in the 50 times I have tried, but I am committed to this blog. So you get little very personal pieces of me from time to time. Hope its okay with you. Thank you for your prayers and support. Love to each of you, Amanda
Monday, February 13, 2012
Chemo Tx 5
Please pray nausea is easy and side effects will be manageable. Thank you! I will update again soon!
Lots of love! Amanda
Monday, February 6, 2012
Believe it to be possible!
On this past Thursday, I met with my surgeon for follow up. He removed the gauze, took out my staples and removed my drain. He went over the pathology report. The mass in the breast had shrunk to less than one inch and the one lymph node removed showed microscopic traces. My oncologist is "tinkled pink". This is really great news for me. So, I will be resuming chemo on Monday, then have last one of this round (Adriamycin- nurses refer to this one as "red devil" & Cytoxen) on 2/27. Then, my second and final round of chemo (Taxotere) will start for 12 weeks, every week. Radiation is after that, which I will be meeting with my Radiation Oncologist on February 9th. I will give you an update of that. I do still have a small superficial blood clot in my arm which means that I have to remain on a blood thinner. I have to limit my leafy green intake and watch bleeding- minor bleeds could be hard to stop.
With that said, this week should be a great week for feeling great. I am 2 weeks out from surgery and I am 1 week away from my next chemo appt on 2/13. So, I will catch up on stuff and go as fast as I can go. Physically, I am doing well, extremely mobile and getting around great. Emotionally, I am doing well. My family is doing well. My son is provided with normalcy and routines and talks that do well for him. He doesn't know I have a wig, he knows that I have new hair. :) I ask what he thinks often and ask him if I should wear a cap or hair. His favorite is my long hair. We guide him the best way possible that we know how. There is no right or wrong. We do the best we can do for a 4 year old.
As you may have picked up from this blog, I spoke at a local church on 1/15. In the weeks following, the pastor was alerted that the cancer he fought 12 years ago may have returned. So much so, that he drove to Mayo Clinic, ran tests and the surgeon removed several inches of his small intestines. The day of his surgery, I even posted on his blog for him that they removed a cancerous area but didn't know definite results. Within days after the surgery, the doctors informed him that it was not cancer and it was not related to his cancer 12 years ago and it was not going to require treatment. Without a doubt, God worked miracles for Pastor Chuck. It is amazing what can be done when you believe.
Thank you for your continued prayers and love for me. Some of you are really close to me through this in your prayers and in your thoughts. Some of you, I am aware of and some I am not, and some of you I don't even know. Thank you for fighting the fight with me. Believing the impossible to be possible!
Saturday, January 28, 2012
Amazing...Grace
On Tuesday, prior to surgery, there were probably 20 people in the waiting room over the course of this, from prayers to laughs to conversation. I love them so! I am overwhelmed with it! Pastors, friends, family, just flat out love! Warning- I digress here.....Before all of this I have always wanted to be the person to send cards timely, send nice notes, or make a phone call when someone was going through something rough. My other priorities always got in the way. I, now, will see to it that I NEVER miss an opportunity to send a timely card, note, text, phone call, or visit with someone who is going through something difficult. Its not any easier for anyone to endure life's difficult times. Everyone can use encouragement. When you think, "I don't want to bother them"---why the heck not? Bother them with a phone call, some chocolate, flowers on their doorstep! Absolutely!
So....back to surgery...I was in surgery for about an hour. With prep, recovery, etc., they called my name at about 12:30pm and I was in a room by 3:30pm. I felt amazingly well, very sleepy. I went home on Wednesday at about Noon. Just sat down and rested.
On Thursday and Friday, I still sat rested. And today, Saturday, just resting. BUT, I can do a lot for myself. I can reach above my head with my left arm. Amazing! I don't even need Advil. I am enjoying my flowers, my cards, the love! My family came to help clean and as usual, I ask for big chores to be done- like clean out Jack's toys. :) Well, they ask if they can help, so I politely accept and let them know what would be great! Haha! :):) Thank you Shirley, Clyde and Momma. :)
Day 4 after surgery. Sat-1/28/12 4:22pm |
I just have to muddle through this and enjoy the grace and family provided by our Heavenly Father! I am ENJOYING things in this much more than I am sulking about anything at all. That is encouraging to me. I could not do this without my friends, family and the grace of God!
Dear Heavenly Father- I pray for my friends and family to are enduring difficult times in their lives. May You show them your light, your way, your grace for them! May they find the words to speak out to their family and friends about it. May they be blessed with love and support from their loved ones and may they receive it. I pray that they RISE ABOVE the difficulty and receive a perspective of thanks, a soft heart, blessings, Your purpose. May they be encouraged and find a place of refuge and protection in You! Amen!
Sunday, January 22, 2012
Nothing More Fun Than Surgery and Shots
Friday was a great day in our house. Donald Southworth was found guilty of murder and sentenced to life in prison. My husband and another detective did the investigation for the past almost two years. It was a really great day for Lexington Police and Commonwealth Attorney and justice!
On Friday, I got to go to the doctor because my arm hurt, the inside crease of my right arm. They sent me into an ultrasound and found that I have a blood clot. I returned to my chemo nurse station where they informed me that I would be giving myself a shot twice a day, a blood thinner, starting now.
Exhibit A |
Needless, or needleness, to say I made it through that. I have to continue every day 8am, 8pm, 8am, 8pm, etc. They bruise pretty easy and are sore initially, but otherwise, I am getting through that.
Another sitatution last week was that I was at Daybreak Community Church speaking about my faith, last Sunday. This is something I never knew I could or would do years ago. If we don't say yes and share our stories, who will? So, I was asked and I did do it. I talked about hope but it felt like it came out more as trust in God. With trust, I can do anything. Each day I can pick to be sad or in fear of the cancer and the unknown, or I can choose to rest in God and that He will take care of what all is entrusted to me, as well as my health.
As for day of surgery, please pray for the doctors to be ready and to have steady hands the day of surgery. Please pray for peace in my family and that God will provide His healing, courage and strength for us. Please pray for my husband, my son, my mom and my stepdad, that they will be lifted up in this step of my journey.
I pray for you reading this. I pray that you know God in intimate ways and can choose to run to Him with all that is yours. I thank God for you and your love and care. Thanks for checking in! AND GO NEW YORK GIANTS!!!!!!!!!! XOXOX Amanda
Friday, January 13, 2012
How did it go? The meeting with the surgeon...
We could have done surgery now or in another month or so. The reason for now is because basically, the Oncologist wants to see what is in there. She has been speculating up to this point and feeling it decrease. Now she is curious and wants to see what is going on. When they lay it out on the table is when they can get a real sense of it.
Three weeks after surgery, chemo- 2 doses of this kind (Adriamyacin and Cytoxen)- will resume on 2/13 and finally on 2/27. Then, we begin another chemo treatment (Taxotere) for 3 months. Surgeon said sometimes they can do radiation at the same time as chemo, so MAYBE we could do that with me?! Bring it on! That is an exciting possibility.
That's my story and I am sticking to it. :) Thank you for your prayers and following this journey with me. You are very busy and I appreciate that you care to stop and check in on me. Makes me happy. :)
Wednesday, January 11, 2012
Meeting with Surgeon
Please pray that we will all be aligned with direction, questions answered and schedule. Please pray that I can again rest in that this is just another necessary part of my journey that I will overcome and still be a strong and beautiful woman that God created me to be.
I am thankful for an unwavering God who is just and who is the One who is really there to carry us when we can't do it on our own. He gives me the courage and strength that I otherwise could not and would not have.
Tuesday, January 10, 2012
- Nausea. I feel like I should throw up at any moment and don't. Then eat 10 minutes later. Giminey!
- Fatigue. I feel like I need to sleep all the time, but can't because my mind is too busy for that! :) When I do sleep, I dream that I need to sleep. :)
- Mouth. It's as if I ate nails and spit them out. And the nails left my mouth rough and metallic. Then eat 10 minutes later.
- Throat. Imagine swallowing the nails and having rough scars that make it difficult to swallow, couple that with dryness.
- Bones. Google Neulasta shot symptoms. Don't tell me what it says. I have 10 sheets of paper listing out side effects that I will not read! I do know I feel like I've been hit by a truck for a few days.
- Eyes. My eye lids stick together sometimes. It's almost as if I have a tick trying to open them back up. So they are dry, yet they tear up easy.
- Heartburn, loud random hiccups. Indigestion all the time.
- Hair. None on my head. Hair on my airms. What's up with that?
- Energy level. It takes 6 times the energy to do something that I would have normally done. Annoying.
- Dizziness. No- not cause I still consider myself blonde! From the 10 (exaggerated) anti nausea meds. Could you imagine these symptoms without the meds!
Thank you for the prayers, good thoughts, love and support. Love from me to you! Amanda :)
Thursday, January 5, 2012
Treatment 4. Done.
I found out this day that my results are really "fabulous". I really understood this in context today. My doctor said, "Lets face it, you had a very large tumor." The response it is having is fabulous, not just to shrink the tumor, but fabulous in the sense that later disease and survival rate looks that much better for me. Now, she wants to see what is in there. So, my bi-lateral mastectomy will be in 3-4 weeks. I will return for 2 rounds of this particular chemo in 6 weeks from now (with 12 weeks of last leg of chemo after that). So, I get a breather from this red devil and others soon.
I don't sleep at night as well in the week following chemo. I woke up at 4am today, plus 2 other times to pee. :) I say pee because it is peeing is very important for me to flush this stuff out. :) My headache was also coming back this morning- which I think is a side effect of one of the antinausea meds. So took Tylenol Rapid Release. I haven't taken Pepsid AC yet which is pretty helpful once a day.
Sorry that I haven't written regularly. You didn't miss much. It took me a total of about 8 days after this last treatment to get over nausea like I like. The holidays were manageable. I missed good family time at my mom's house. But, it all worked out ok. One other thing...I had prickly random hairs left from the shave. They would stick in my caps and hurt my head. So, I, yes ME, I took my razor, lathered up my head and shaved it front to back. No cuts. It was a great experience. It does seem like the fatigue symptoms and others are compounding but not complaining worthy.
I ask for prayer that the chemo continues to work on every single cell that it is supposed to reach in my body and that I will receive complete healing. As we exit the holiday season, I pray that my family and friends all remain strong in spirit and not lose any momentum in the fight attitude. I pray my family's love for each other grows stronger as it has. I pray that as we enter into another aspect of this with surgery closing in, that beyond hair and now soon beyond breasts, that I can can have a peace beyond comprehension and rest in that I am the beautiful, loving me- as a woman, as a mother, as a wife- that God made me to me with or without all of my parts. I am deeply thankful for my family, friends and workplace who give me time that I need, cards, prayers, notes, chauffer service, food, laughs, pictures, emails, blog comments, texts, bible verses, hugs when possible, smiles, gifts, candy, cozy blankets, visits, special notes and prayer for my husband and my son, and words that say, "Amanda, anything, anything at all you all need, let me know." I am so thankful for the love you pour out to me. I am praying regularly for you. Lots and lots of love from me to you! Amanda